the mission of noah’s never ending rainbow is to educate, advocate, raise public awareness, promote strategic alliances and assist families who have children with trisomy and related chromosome disorders.
“Noah’s Never Ending Rainbow continues to be a support when most other organizations stop giving. They not only care about the person affected with this horrible disorder but also the family.”
The following links are provided so you can learn more about Trisomy and related chromosome disorders. The links, which are listed alphabetically, are for further information and support only and not an endorsement of any one organization, foundation, support group, registry, clearinghouse, agency or entity.
- Agenesis of the Corpus Collusum – ACCKIDS
An e-mail discussion group for parents, caregivers and extended family and friends that have an ACCKID in their lives.
- Anencephaly Support Foundation
A support group that consists of families who have had a baby born with anencephaly.
- Association for Children with Down Syndrome (ACDS)
Dedicated to the education and training of children and adults with Down syndrome (Trisomy 21) and other developmental disabilities.
- Association for Retarded Citizens, The Arc
The Arc is the national organization of and for people with mental retardation and related developmental disabilities and their families. It is devoted to promoting and improving supports and services for people with mental retardation and their families. The association also fosters research and education regarding the prevention of mental retardation in infants and young children.
Resource: difficult pregancies/grief
- A Butterfly’s Touch
A non-profit Christian organization providing support to parents whose lives have been impacted by the heartbreaking loss of a child to early pregnancy loss, stillbirth, or newborn death. Their mission is to share the compassion of Jesus Christ by providing support to parents experiencing infant-loss during their time of need. They accomplish this by providing memory boxes and remembrances for parents; provide information and support through their free lending library and; help to lessen financial burdens through a fund to help with funeral and burial expenses.
- A Place to Remember
Uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby.
- IVF Authority
In Vitro Fertilization(IVF) One Stop Resources.
- Be Not Afraid
An online outreach to parents who have received a poor or difficult prenatal diagnosis.
- Carrying to Term
Support following a tragic prenatal diagnosis.
- Compassionate Friends
A self-help organization, with chapters throughout the United States, which offers understanding and friendship to parents who have experienced the death of a child or miscarriage.
- Hannah’s Prayer
Offers Christian support to couples who are facing infertility or the loss of a child any time from conception through infancy.
- Just Health And Lifestyle – The premium resource for wellness and lifestyle information. Improving lives by helping people make the right choices.
- MISS Foundation
A non-profit volunteer based organization committed to providing emergency support to families in crisis after the death of their baby or young child from any cause.
- Morning Light Ministries
A Catholic ministry for bereaved mothers and fathers who have experienced the death of their baby through ectopic pregnancy, miscarriage, stillbirth or infant death up to one year old. This Catholic ministry also welcomes bereaved parents of other Christian denominations, bereaved parents of other faiths and bereaved parents of no religious affiliation who are struggling with the very notion of faith.
- SHARE Pregnancy and Infant Loss Support
A not-for-profit nondenominational organization providing support to those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth or newborn death. All information packets, correspondence and support are free of charge for bereaved parents.
- Sidelines National Support Network
Provides nationwide support for women and their families experiencing complicated pregnancies.